Blogging can create a knowledge base
Fully unintentionally, blogging can create a Knowledge Base. I first began blogging shortly after my Mom passed away 6 years ago. Mom had Alzheimer’s for a decade before she passed away under hospice care with lung/thyroid cancer. It is not unusual for those with dementia to die from some other disease as their health deteriorates and co-morbidities often exist.
That time in my life was haunting, confusing, scarey and just plain sad. Half the time I felt like my head was spinning. Confusion rains supreme when you’re caring for someone with dementia. You don’t know if they are fibbing or telling the truth, eating or hiding their food, sick or merely need attention. And they have absolutely NO control over any of their behavior.
Blogging helped me air my feelings and vent, find new friends in the same predicament. I joined forums online and shared feelings and I thought I’d never tell anyone .
Mom no longer knew who I was, but looked forward to seeing me everyday as the nice lady who took care of her. From the glint in her eye, I knew I was still her daughter it was only that the word…daughter–had faded from her mind many many months before.
The sadness from her death was indescribable, even more so because she had no idea what was happening. Yet I’m sure Mom suspected death since she pleaded for one more “square dance” before the end.
Weeks later, I joined support groups and message boards, seeking to understand more about dementia. Working with others, I began to support other caregivers as they headed down the same road I’d already walked.
The more I learned, the more I wanted to share with others–
Had I known while caring for Mom, all that I learned after her passing, our lives with Alzheimer’s and dementia would have been much easier.
During the past 6 years I’ve learned from support groups, books I’ve read and reviewed, video’s I’ve watched, and all the people I’ve met who work with Alzheimer’s, dementia, Parkinsons, and many other diseases every day.
Alzheimer’s Support became the Knowledge Base I created from all I learned